Showing posts with label encopresis. Show all posts
Showing posts with label encopresis. Show all posts

Thursday, April 5, 2012

Ch-Ch-Ch-Changes . . .

Wow, has it really been since JANUARY since I blogged last? Wow! Of course, it's really no surprise, what with everything that's been going on the last few months!

There have been a lot of changes going on in our lives. A. Lot.

First off, we have started some changes with my daughter. Little Miss has been diagnosed with ADHD/ODD and dysgraphia. In a nutshell, she's hyper, has a hard time focusing, doesn't do well with authority, and has REALLY bad handwriting. In the complex, her mind doesn't work the way it should, and she knows it, so she gets frustrated and angry with the world. Her hyperactivity affects her handwriting, and her frustration with that causes her to lash out at those she's closest too - namely me and her teachers.

After much prayer and discussion, we decided (my husband, Little Miss, and I together) to try medication. Since spring break, Little Miss has been on Vyvanse. This was not a choice that we took lightly. It involved MONTHS of research and other interventions to come to that choice. And I am so glad we did. Little Miss has improved by leaps and bounds on this medication. In her words: "I don't feel like I have to jump up and down all the time". As a result, her frustration level has diminished, and as a result of THAT, her behavior has improved. My daughter went from a straight c report card (with one failing grade) to A's, B's and C's. Needless to say, I am now a complete advocate on medication when it's warranted (**NOTE: Medication is NOT right for EVERY child/family. PLEASE do extensive research on your available options and work directly with your pediatrician before making decisions on something like that**).

The next big change we made also involved Little Miss. Because of her problems with encopresis and constipation (even on an adult dose of Miralax a day) we decided to try some dietary changes. Specifically, we have gone low-gluten. While we did have tests run and Little Miss does NOT have Celiac Disease, it's possible that a gluten sensitivity could be causing her issues.

The final, and biggest change (for me, anyway) is that I started my own business. I am now a full-on Mary Kay Independent Beauty Consultant! It's an exciting change for me for many reasons, but the main reason for me is that I now am able to supplement my family's income while still being able to be at home with Little Man and being able to be available in case Little Miss and Big Guy need me. There's also the fact that I'm having a blast. I love skin care and makeup, so this is right up my ally!

With all the changes taking place, it's a wonder my head is on straight! But despite all the craziness, this is my life, and I wouldn't change it for the world!

Thursday, April 21, 2011

Raising a Child With Encopresis . . .

This is such a personal issue. I almost didn't blog about it. But then I realized how important this topic really is and how much it is overlooked in the mainstream.

My child lives with a disorder called encopresis.
If you don't know what encopresis is, you can Google it and get a wealth of information.
These sites will give you the ins and outs of the physiology of it all - how it's caused by constipation and a blockage in the lower colon. Or how it is liquefied fecal matter seeping around the blockage. Or how the lower colon will become stretched.

But what these web sites won't tell you is the emotional distress it can cause. On my child. On my family. On me. On her educators, sitters, grandparents, ANY one she comes in contact with.

They don't tell you about the embarrassment you will feel as you walk into a store with your child as they smell like a bathroom, but don't notice it because they're so used to it they can't sense it.

They don't tell you the frustration you will feel as you help your child clean themselves up for the 1000th time, or throw away three pairs of underpants in one day.

They don't tell you the anguish you will feel ans your baby girl cries on your lap, saying her friends don't want to play with her because they tell her she smells bad.

They don't tell you the anger you will feel at your child's school for not doing enough to ensure she sits on the toilet during school hours. Or the anger at her doctor for telling you to do the same treatment over. and over. again. and again.

They don't tell you about the cost of medicines, doctor's visits, x-rays, new clothes, new sheets . . .

Every day I look at my child - my unbelievable blessing - and I pray for God to PLEASE make my baby be normal again. My soul is crying out in anguish for this problem to just go away.

It is so hard to raise a child with a problem like this.
No one likes to discuss it.
No one wants to know about it.
Everyone wants to hide it and pretend it doesn't exist.

But it does exist, and it's very visible.
Thanks for listening.