This is such a personal issue. I almost didn't blog about it. But then I realized how important this topic really is and how much it is overlooked in the mainstream.
My child lives with a disorder called encopresis.
If you don't know what encopresis is, you can Google it and get a wealth of information.
These sites will give you the ins and outs of the physiology of it all - how it's caused by constipation and a blockage in the lower colon. Or how it is liquefied fecal matter seeping around the blockage. Or how the lower colon will become stretched.
But what these web sites won't tell you is the emotional distress it can cause. On my child. On my family. On me. On her educators, sitters, grandparents, ANY one she comes in contact with.
They don't tell you about the embarrassment you will feel as you walk into a store with your child as they smell like a bathroom, but don't notice it because they're so used to it they can't sense it.
They don't tell you the frustration you will feel as you help your child clean themselves up for the 1000th time, or throw away three pairs of underpants in one day.
They don't tell you the anguish you will feel ans your baby girl cries on your lap, saying her friends don't want to play with her because they tell her she smells bad.
They don't tell you the anger you will feel at your child's school for not doing enough to ensure she sits on the toilet during school hours. Or the anger at her doctor for telling you to do the same treatment over. and over. again. and again.
They don't tell you about the cost of medicines, doctor's visits, x-rays, new clothes, new sheets . . .
Every day I look at my child - my unbelievable blessing - and I pray for God to PLEASE make my baby be normal again. My soul is crying out in anguish for this problem to just go away.
It is so hard to raise a child with a problem like this.
No one likes to discuss it.
No one wants to know about it.
Everyone wants to hide it and pretend it doesn't exist.
But it does exist, and it's very visible.
Thanks for listening.